Fibro World - Latest Comments in Fibromyalgia Blog - Fibro World - You know you have fibromyalgia when...

Re: Fibromyalgia Blog - Fibro World - You know you have fibromyalgia when...

Debbiepetrunyak — Sun, 12 Jun 2011 11:07:43 -0000

This is a very cute story. LOL been there and have gotten all these reactions from drs and others. Your not in pain if they can't see it.
I have recieved 2 Botox Treatments for my Migraines, I am very pleased with this tx. By far this is the only thing thast has helped my Migraines and muscle pain inthe neck and shoulder pain. If your trying to send it thru your Insurance, try having your Drs submit in under a different code. Most Insurances wont cover this as they see the word Botox and think, Cosmetic, I looked up my Condition then looked over my Insurance Coverage found that if you submit it under Cervical Dystonia the Insurance will cover the tx. I paid for my tx. the first time as I didnt know protocol for submitting it to Ins. Co. My last injection was on June 6, 2011. Insurance has covered this procedure 100 %. A different technique was used this time and Im pretty sure its not gonna work this way for me, so we will do the other technique that was used in prior tx, as we found this to be very affective. its very expensive, however it is well worth the money, mine lasted about 4 months, with no migraines and some small little headaches.

I would try anything to get my life back from the Migraines and the Fibro. I'm 43 and havent been able to work since 2007. Just not how I pictured my life at this age.
Good luck to yall. If you havent tried this I highly reccommend that you do.
Much love out to all you Fibro sufferes, and btw, NO WE ARE NOT CRAZY!!!!!!!!!

Debbie

Re: Fibromyalgia Blog - Fibro World - You know you have fibromyalgia when...

elissa — Sun, 19 Sep 2010 12:57:06 -0000

I'm so glad you are both doing this blog together, I've learned a lot from it.

Re: Fibromyalgia Blog - Fibro World - You know you have fibromyalgia when...

Di — Sun, 15 Aug 2010 09:01:16 -0000

most definitely!! CafePress, here we come... i can't wait to wear mine with pride :-)

Re: Fibromyalgia Blog - Fibro World - You know you have fibromyalgia when...

Kat — Tue, 10 Aug 2010 01:11:58 -0000

Hi, I'm doing the 31 Days to a Better Blog with you in blogfrog. I was diagnosed with fibro in 2005 and haven't worked since Spring 2006. Anyways, I wanted to say hello. Any advice you can give would be great. I haven't talked to a nutritionist, but I saw a rheumatologist in 2005. My mom's cause has RA so that worries me. When I was tested last I showed negative, but my rheumy said I could still have it.

I'm able to walk around the mall but I'm much slower and I have to take breaks. Today I went with my 12 year old daughter. It's horrible when we go with her friends because I'm far behind them. Usually I tell them to just call me when they want to meet up again. I just can't keep their pace. I was trying to do an observation for the blog assignment. I've been going back and forth with the assignments 13-20.

Anyways, you can find me at:

Katharine @ Kat's Almost Purrfect World
http://katspurrfectboutique.bl...

Re: Fibromyalgia Blog - Fibro World - You know you have fibromyalgia when...

Dot — Sun, 01 Aug 2010 16:10:41 -0000

Thanks for the endorsement, Di! We're waiting for the Letterman call and Dot The Hippo gets all giggly thinking about her own line of tshirts! Do you think the world is ready for the unveiling of Dot?!

Re: Fibromyalgia Blog - Fibro World - You know you have fibromyalgia when...

Di — Sat, 31 Jul 2010 18:40:55 -0000

hey dot!

i loved this post. shouldn't it be a david letterman top 10 list? we should make t-shirts. thanks for helping to raise my awareness another magnitude or so with your hard work - and mom too!

keep it up :-)

Re: Fibromyalgia Blog - Fibro World - You know you have fibromyalgia when...

Dot — Sat, 31 Jul 2010 14:53:20 -0000

Michelle, thanks for sharing your Lyrica story. It's amazing how drugs with such horrible side effects are prescribed so easily. I gained nearly 40 pounds in the first 2 months of taking Lyrica and they're still reluctant to leave, even though I quit Lyrica after a few months -about 2 years ago!

I'm so happy to hear that you are doing well without any meds! Can't wait to read more about it on your blog.

Re: Fibromyalgia Blog - Fibro World - You know you have fibromyalgia when...

Michelle A. — Sat, 31 Jul 2010 12:35:47 -0000

That is great! I so can relate to that!!! Lyrica - that drug is nothing but a hazard! I took one and should have gone to the hospital because of what it did to me, but i hate hospitals and waited out the side effects at home (probably a mistake, but...) No more fibro drugs for me - and that has been the best medicine in treating my fibro thus far!!! ;)

Re: Fibromyalgia Blog - Fibro World - You know you have fibromyalgia when...

Fibro Mom — Fri, 30 Jul 2010 22:14:29 -0000

Thanks for recognizing what is hidden beneath the humor, Shmonae. Really appreciate your kind comment! Fortunately, Dot and I have been able to find the funny side of most situations and it really keeps us going.

Re: Fibromyalgia Blog - Fibro World - You know you have fibromyalgia when...

Fibro Mom — Wed, 28 Jul 2010 15:29:23 -0000

Wow - having Lupus too must make your life incredibly challenging. I hope
you've developed a comfortable and manageable lifestyle despite all of the
above.

Re: Fibromyalgia Blog - Fibro World - You know you have fibromyalgia when...

Fibro Mom — Wed, 28 Jul 2010 15:28:29 -0000

Thanks! It'd really be sad if we couldn't celebrate the humor. Keep
smiling!

Re: Fibromyalgia Blog - Fibro World - You know you have fibromyalgia when...

jmiller2 — Wed, 28 Jul 2010 14:32:48 -0000

I love this! Couldn't be more true!

Re: Fibromyalgia Blog - Fibro World - You know you have fibromyalgia when...

Sara — Wed, 28 Jul 2010 01:08:22 -0000

These are great! I have lupus on top of it, but omg I do get all of these!

Re: Fibromyalgia Blog - Fibro World - You know you have fibromyalgia when...

Shmonae — Tue, 27 Jul 2010 16:51:05 -0000

I know this is supposed to be funny...but really my heart just goes out to you for making something that must be really hard...a little easier. You are amazing!
- Shmonae, July 25

Re: Fibromyalgia Blog - Fibro World - You know you have fibromyalgia when...

Fibro Mom — Mon, 26 Jul 2010 11:15:26 -0000

Julie - I guess that's what is so disturbing about the Lyrica ad. It minimizes the suffering and complexity of fibromyalgia and chronic pain treatment. It's like saying, "Take two aspirins and you'll be fine." Hang in there - Dot and I are wishing you the best.

Re: Fibromyalgia Blog - Fibro World - You know you have fibromyalgia when...

Julie — Mon, 26 Jul 2010 09:54:20 -0000

I don't know anyone else with fibro, so thanks for the chuckle at #1. Yeah right ~ that's all it's going to take...one little pill and we're "HEALED". (NOT)

Re: Fibromyalgia Blog - Fibro World - You know you have fibromyalgia when...

Fibro Mom — Sun, 25 Jul 2010 12:30:16 -0000

Selena- Your comments had Dot and I rolling on the floor, a lot! We love Sandra Boynton - anyone who draws hippopotamuses must be some kind of artistic genius.

Re:fibro diet, according to the WebMD fibromyalgia diet, fibro food no-nos include sugar, dairy, caffeine, and veggies from the nightshade family - tomato, potato, bellpeppers and eggplant). However, if they don't trigger fibro pain then you're one of the lucky people who can eat them. We talk about Dot's diet in the post Fibromyalgia Diet: Gluten Free Is Not Free.

Re: Fibromyalgia Blog - Fibro World - You know you have fibromyalgia when...

Selena — Sun, 25 Jul 2010 12:29:11 -0000

OMG, I love, love, love Sandra Boyton! A lot. I used to go down to Westwood and peruse Aahs! and buy tons of her cards. They're hard to find now...

Oh, what was I doing, yes commenting on your post. Sorry, got distracted by the hippopotamus. (Spelled that wrong, but I have spell checker in my bowser so I corrected it and now look like a genius! LOL!)

Trip and fall ... I do that, a lot. My doctor gave up and just gave me the permanent disabled placard, which is free btw here in California. Why are eggplant and tomatoes your enemy? I love them ... but they aren't good for fibro? But I have so many planted in my garden...

OMG I love Sandra Boyton! Oops ... I already said that. LOL!
July 22, 2010

Re: Fibromyalgia Blog - Fibro World - You know you have fibromyalgia when...

Fibro Mom — Sun, 25 Jul 2010 12:26:57 -0000

Hello Doreen- Thanks for your great feedback - I hope your Mom can find some helpful info here and that she's been able to find the medical resources she needs. It seems that every year, there is more attention and research given to fibro and other chronic pain conditions. Fingers crossed that a cure is on its way! We'll be reading your blog!

Re: Fibromyalgia Blog - Fibro World - You know you have fibromyalgia when...

Doreen McGettigan — Sun, 25 Jul 2010 12:25:08 -0000

I am stopping by for a visit from Over 40 FF. I just followed you with Twitter. My Mom has Fibro and had it back when there was no information. This is so helpful I am going to pass it along to her.
I hope when you get the chance you will stop by to say hello!
doreenmcgettigan.blogspot.com/ they say everyone has a story..

Re: Fibromyalgia Blog - Fibro World - You know you have fibromyalgia when...

Fibro Mom — Sun, 25 Jul 2010 12:19:51 -0000

Hi Joanne - It's important to hear about your experience with Lyme Disease and the error rate of testing. It's wonderful to hear that you're fully recovered. I enjoyed reading your full story on your blog Looking At Lyme. Thanks for posting and raising awareness!

Re: Fibromyalgia Blog - Fibro World - You know you have fibromyalgia when...

Joanne — Sun, 25 Jul 2010 12:17:02 -0000

I was diagnosed with Fibromyalgia as well as many other things as my illness deteriorated. It was a chance course of antibiotics which significantly improved my symptoms that led to my GP suspecting Lyme Disease. Later confirmed by a specialist in this field.

After many months of antibiotics I have my health and my life back.

Blood tests for lyme Disease can miss up to 50% of cases it should be a clinical diagnosis for more information see www.ilads.org or read the information on my blog.

July 17, 2010

Re: Fibromyalgia Blog - Fibro World - You know you have fibromyalgia when...

Fibro Mom — Sun, 25 Jul 2010 12:08:10 -0000

Welcome FibroGurl- I'm so glad you enjoyed the post. It's always good to know that there are other fibro people who can laugh about what they're going through. Unfortunately, fibro isn't always fun and games. But I hope happy, pain-free days are on their way to you and your Mom. Look forward to reading more on your blog FibroGurl.

Re: Fibromyalgia Blog - Fibro World - You know you have fibromyalgia when...

Fibro Mom — Sun, 25 Jul 2010 12:07:48 -0000

Dear Alyssa- I'm so glad I could give you a tiny break from the everyday trial that fibro folks face! I hope you're doing well and are finding the resources you need to cope with this very frustrating and unbelievably complex condition. Dot joins me in sending a gentle hippo hug!

Re: Fibromyalgia Blog - Fibro World - You know you have fibromyalgia when...

Fibro Mom — Sun, 25 Jul 2010 12:07:26 -0000

Dear Tiffany- Yes, it's so vital to have a sense of humor! So glad to know you find the Lyrica ads amusing too. But wouldn't it be great if there were more medications that actually worked too?